Dystonia International Patient Registry Home
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Botox injected into affected muscles prevents muscle contractions and can provide temporary improvement in the abnormal postures and movements that characterize dystonia.
Our Group is affiliated with the DMRF. Click their logo on the left to go to their site. Our group is also affiliated with the. NSDA Click their logo on the right to go to their website. Dystonia Support and Advocacy Group of San Diego County. Visit us on Facebook at www. For the latest news and information please click here. To go to our announcements page. SAT, MARCH 31, 2018.
Lets Find a Cure! Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords. From Kitchen to Cure! Rick and Michelle Staab. Koss - Olinger Financial Group.
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STAUNCH SYSTEMS LLC
5200 NW 43RD ST SUITE 102-132
GAINESVILLE, FL, 32606
US
PETER WEST
STAUNCH SYSTEMS LLC 5200 NW 43RD ST
GAINESVILLE, FL, 32606
US
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Dystonia International Patient Registry HomeDESCRIPTION
The Registry is a self-reported, international, multi-center, disease or condition listing registry for dystonia-affected persons and their families who carry any of the dystonia genes; no experimental intervention is involved. A listing registry is quot;Data that is collected in a naturalistic manner such that the management of patients is determined by the caregiver and patient together and NOT by the registry protocol.quot; As the Registry is a voluntary program, Tylers Hope and its partners supportCONTENT
This web site dipregistry.com states the following, "Request to use Dystonia International Patient Regi." Our analyzers noticed that the webpage also stated " Welcome to the Dystonia International Patient Registry DIPR." The Website also said " The goal of this registry is to develop a comprehensive list of all individuals who carry any of the Dystonia gene deletions, specifically the DYT1 gene deletion and their family members worldwide. It is the first and only Dystonia registry to attempt to capture this information to assistresearchers in finding a cure to Dystonia." The website's header had DotNetNuke as the most important optimized keyword. It is followed by DNN which isn't as highly ranked as DotNetNuke.SIMILAR DOMAINS
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